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The debilitating and agonizing pain the would drive me into a manic state mercilessly trying to find him relief started out like this. Then a misdiagnosis at Riley Children’s Hospital in February. Too many steroids for bullshit pain management that would eventually shut his adrenal glands down causing his adrenal insufficiency……too many trips to the ER here with no resolution. No one ever checked his head which I will never understood. Pain management doctors that didn’t believe me and over 30 hospitals and universities called in about 3 months time. Finally we would end up at Lurie Children’s Hospital in May and Adler was in critical condition by that point. And we are still there. And he is still here. He is still here. What. A. Journey. Bold As Love. 🅰️🌈⚓💙

by | Dec 20, 2020 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

The debilitating and agonizing pain the would drive me into a manic state mercilessly trying to find him relief started out like this. Then a misdiagnosis at Riley Children’s Hospital in February. Too many steroids for bullshit pain management that would eventually shut his adrenal glands down causing his adrenal insufficiency……too many trips to the ER here with no resolution. No one ever checked his head which I will never understood. Pain management doctors that didn’t believe me and over 30 hospitals and universities called in about 3 months time. Finally we would end up at Lurie Children’s Hospital in May and Adler was in critical condition by that point. And we are still there. And he is still here. He is still here. What. A. Journey. Bold As Love. 🅰️🌈⚓💙

by | Dec 20, 2020 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/2WwqNrr
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