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We have come full circle. Adler saw his new physical therapist today…..who evaluated him 7 years ago. He was 4 years old and in agony with buttock pain. His episodes of pain were so excruciating at times that he would be soaked in sweat and tears. He would vomit and fall to the floor. It was awful. He was misdiagnosed with arachnoiditis and began heavy steroids for pain and a couple other drugs that didn’t help at all and made him sick. He began physical therapy also. Here. And that bike. He rode the hell outta that little blue bike. We couldn’t believe they still has it!!! Now. He stands 5’5″ tall at 11 years old and here we go again. I’m not sure how to feel about it all. I’m happy to have her on our side again but it’s also so heartbreaking to see where we started and know at the root of it all was and is cancer. The good and the bad. The beautiful and the ugly. The love and hate. The appreciation and the why’s. Finding grace in the dark. Man, it’s a lot sometimes. I knew nothing then. And now I know too much. It’s about balance……in the balance room as it’s now called. Go figure!!!! ☯️🅰️💙🌈⚓

by | Feb 9, 2021 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/3a2YMz9

There is beauty in every day. Even in the eye of the storm that is our life. Once again faced with fear filled uncertainty that smells and tastes just like 7 years ago and 3 years ago. Just. Look. It’s there. Beauty. Adler went to school today. Without his neck brace. Today is the last 7 hour day. Tomorrow starts 8 hours for 3 days and he can sleep without it. Then, he’s out of it for good. Another giant hurdle passed for him in the name of Adler living with and kicking cancer’s ass!!!!! He pushed for today. Pain kept us up late again but he wanted to go. And he’s there with no complaining. He simply wants to be there more than anything. More than pain and discomfort. Tomorrow may be different but hey, today is ok!!! He’s at his wonderful school with his friends and the amazing staff that not only gives him comfort but me as well!!!! I am truly thankful for that!!! He has his evaluation with a new physical therapist today too. Well, new but old. She evaluated him when he was 4. Pre proper cancer diagnosis. So. We’ll see!!! Onward. That’s what’s up!!!!

by | Feb 9, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

by | Feb 9, 2021 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/2MMvGeA

by | Feb 9, 2021 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/3q8JKxx

by | Feb 9, 2021 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/3b3Lv99
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