#AdlerSwag
Donate

His evaluation with the new oncologist went pretty good!!!! She’s no nonsense, direct and is getting involved in his care in a way that I appreciated very much. Took me a minute to adjust to that but, she will be getting in touch with the local pain doc, his general practitioner and calling Nemours Children’s Hospital about the pain management program that we have the evaluation set up in June. She wants to be involved and make sure everyone is on the same page and she wants to make sure everything is in Adler’s best benefit. That’s what I appreciated. It’s something kind of foreign to me and I wasn’t sure how to take it at first but realized it was a good thing. I’ve had to do SO much on my own for him that for her to step in and step up was a bit shocking. All in a good way though!!!! But my control freak side was like ummmmm, hang on, I got this. But again, it’s all for the good of Adler and I like that!!! A lot!!!! Now there’s no magic pills or anything and she made that clear and we knew that. Been down that road already. She’s all for alternative treatment and learning ways for Adler do deal with and live with his unfortunately unique to him due to his cancer chronic pain. So those avenues will be looked at. Some already known and possibly revisited. Along with her kind of being the hub for all of it between docs and hospitals. His next MRI will be in May and once that’s tucked away, if all is good, we can focus on that appointment in June at Nemours in Orlando and getting that piece all situated. Mannnnnn. Disney is in 20 days. And do we ever need that magic!!!!!

by | Mar 23, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

His evaluation with the new oncologist went pretty good!!!! She’s no nonsense, direct and is getting involved in his care in a way that I appreciated very much. Took me a minute to adjust to that but, she will be getting in touch with the local pain doc, his general practitioner and calling Nemours Children’s Hospital about the pain management program that we have the evaluation set up in June. She wants to be involved and make sure everyone is on the same page and she wants to make sure everything is in Adler’s best benefit. That’s what I appreciated. It’s something kind of foreign to me and I wasn’t sure how to take it at first but realized it was a good thing. I’ve had to do SO much on my own for him that for her to step in and step up was a bit shocking. All in a good way though!!!! But my control freak side was like ummmmm, hang on, I got this. But again, it’s all for the good of Adler and I like that!!! A lot!!!! Now there’s no magic pills or anything and she made that clear and we knew that. Been down that road already. She’s all for alternative treatment and learning ways for Adler do deal with and live with his unfortunately unique to him due to his cancer chronic pain. So those avenues will be looked at. Some already known and possibly revisited. Along with her kind of being the hub for all of it between docs and hospitals. His next MRI will be in May and once that’s tucked away, if all is good, we can focus on that appointment in June at Nemours in Orlando and getting that piece all situated. Mannnnnn. Disney is in 20 days. And do we ever need that magic!!!!!

by | Mar 23, 2021 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/3shuYWe

Through out this journey I have peered in on him while he sleeps. Through his door at home standing stoic with tears in my eyes in the hallway. Quietly from beside him in hotels before we had the condo or from my own bed when he’s slept with me. Appreciating his peace, his breathing, his soft face not wincing in pain, his growing body so weak craving this sleep but because of pain he doesn’t often get. Rest is coveted in the cancer life. The body and mind so weary and drained. Life lost even though we are living as it’s passed us by, especially him. Stolen by pain caused by his cancer. A few more minutes and I will wake him for some breakfast before his appointment. A PTSD induced routine we are all accustomed to but never used to. Accepted with no choice. A freedom from pain and disease begged for in reality but only achieved in slumber.

by | Mar 23, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

Through out this journey I have peered in on him while he sleeps. Through his door at home standing stoic with tears in my eyes in the hallway. Quietly from beside him in hotels before we had the condo or from my own bed when he’s slept with me. Appreciating his peace, his breathing, his soft face not wincing in pain, his growing body so weak craving this sleep but because of pain he doesn’t often get. Rest is coveted in the cancer life. The body and mind so weary and drained. Life lost even though we are living as it’s passed us by, especially him. Stolen by pain caused by his cancer. A few more minutes and I will wake him for some breakfast before his appointment. A PTSD induced routine we are all accustomed to but never used to. Accepted with no choice. A freedom from pain and disease begged for in reality but only achieved in slumber.

by | Mar 23, 2021 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/3tMgTAG
X