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by | May 7, 2021 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/2Rv39MH

by | May 7, 2021 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/3hdNNap

“Now Back” That’s what he wrote on his new white board!! Give him Disney for his happy place but school……school is truly his happiest place. It had been since preschool. He absolutely couldn’t wait to go. And then kindergarten, well, that was such a big deal because it was all day everyday. He was ecstatic. But chemo days and pain limited his time there. First grade was his only “normal” year. It wasn’t without a few hospital stays, his routine MRI’s and an ambulance run but for the most part, about as normal as WE could get. Second grad started out pretty normal. Then the pain returned and full days turned into half days and missed days and many pick ups due to pain so I pulled him out towards the end of the year. Always with the want to participate, he attended the special days and things if he could. Third grade went about the same. Half days and missed days and most days with pain. Never without pain. Then. Then. Tumor growth recognized, biopsy and loss of his arms. That was into 4th grade and he began treatment then as well. The trial began in September of 2019 just about 2 months aftet the biopsy. So. Focus was on his arms. School missed a lot because of it. Then the pandemic hit. Everyone got sidelined then. 5th grade was supposed to be his year. His comeback……but……cancer changed that too. Pain, fatigue and another neck surgery, and more pain caused him to miss out again. I pulled him in March. He needed a break. We thought time for his body to regain his strength since we stopped treatment. That’s unfortunately not what happened. The pain increased and we’re trying to get it managed now. So. Why now?? Why even go back for a few weeks?? Because why not?? He’s desperate for interaction. He misses it so much. He has barely had a taste of fifth grade. He’s barely had much time there at all in the last 3 years. So. Today he began again. With pain. No treatment plan in place. No neck brace. In a mask with social distancing still. Me crying as I walked to my car. Just a lil bit of something good. Let him feel that. Let him be a kid. Let him play outside today aftet lunch. Let him feel that. Let him be Adler Carris at school not at home on the heating pad. Let me not mess up car line since I’ve done it once since Covid. Let us both feel good. Just good. Not spectacular. Just good. Let us breathe. Just breathe a lil bit of something else. He’s at school. He’s at school.

by | May 4, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP
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