I got up before 6am to give him his pills. His alarm then goes off at 6:58am. He came out wincing. Last night he took Tylenol for his neck and shoulder. The past few nights his back and/or stomach have hurt. He said this morning “Chemo is really kicking my butt right now”. He’s supposed to be at school for testing today. He knows that. I know that. And he got upset about it. But he’s so tired and he said his whole body just hurts. I told him I would talk to his teacher and we’ll figure it out. Boris and I tucked him back in and hopefully he gets some rest. I got teary as he laid in bed and Boris licked his face and gave him some love. We chatted a minute as he got comfortable again in bed. Seeing him lay there knowing he’s fighting for his life does something to you. It stays with you, almost hauntingly. He’s a fighter and pushes through it but right now it’s exhausting for him. (and me). The pain and the discomfort have been here for so long, you think we’d be used to it but man does it still suck. A routine of pain and fatigue. I got a fire going since we won’t be leaving and all the space heaters are running and hopefully a new furnace will be installed today! I know he’s not bald and in a hospital bed but he is still battling cancer here at home. Everyday. This is what our journey looks like right now. And he’s afraid that this will all be for nothing as what if the treatment doesn’t work? What if it still grows again? And it will. Because that’s what it does. And he knows this. He’s talked about some deep stuff with me lately and it hurts my heart that this is how it is. I’ve done my best to reassure and give validation and comfort to him and his feelings. And his play therapist is hopefully coming by this week too. So maybe some good vibes today would be appreciated. Thanks. 🅰️🌈💙⚓

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

Adler