These late nights are daunting to say the least. I feel for him. His pain ramped up over the weekend and then kind of subsided today but here we are up late again with him on the heating pad. He told me last night he was worried. Worried his tumor was already growing since he’s off treatment. The pain has always been a tell tale sign that there’s growth so why wouldn’t he worry?? Why wouldn’t I worry?? And I am. I don’t think the worry ever goes away. Ever. Especially when you come home with no treatment, pain management left up to me after they disappointedly couldn’t help Adler again and the watch and wait portion of this cancer journey truly sucks. It’s rather terrifying actually. He does have an appointment with a local pain doc tomorrow and I do hope he’s got some ideas for my boy who’s suffering. I’m not sure how long I can just let this go on??? Calls will be made as his new oncologist needs to know what’s happening with him. The wait and the weight continue……..

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

Adler