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A good view of Adler’s shunt since he was losing his hair. Soon it would all be gone including his eyebrows and eyelashes. The suckers on the bed were for port flushes. It gave Adler a nasty taste in his mouth so he would have them ready. He preferred the blue ones. (He liked those anytime, not just for Port flushes) They had a lollipop tree that the lids could pick from. One time all the ladies at the bank gave Adler a huge bag full of blue suckers. Lisa Namisnak was part of that!! We spent hours at chemo. Hours at home in pain. Still do. Hours in hospitals waiting for doctors, tests, therapies……Hours that add up to this hell of a journey we are on that some days seem never ending even when you look back to pictures like this and are so thankful for the days you still have. September is Childhood Cancer Awareness and Hydrocephalus Awareness Month. Here it is in one picture. 💛🎗💙💦

by | Sep 11, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

A good view of Adler’s shunt since he was losing his hair. Soon it would all be gone including his eyebrows and eyelashes. The suckers on the bed were for port flushes. It gave Adler a nasty taste in his mouth so he would have them ready. He preferred the blue ones. (He liked those anytime, not just for Port flushes) They had a lollipop tree that the lids could pick from. One time all the ladies at the bank gave Adler a huge bag full of blue suckers. Lisa Namisnak was part of that!! We spent hours at chemo. Hours at home in pain. Still do. Hours in hospitals waiting for doctors, tests, therapies……Hours that add up to this hell of a journey we are on that some days seem never ending even when you look back to pictures like this and are so thankful for the days you still have. September is Childhood Cancer Awareness and Hydrocephalus Awareness Month. Here it is in one picture. 💛🎗💙💦

by | Sep 11, 2021 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/3hlLykg

He’s made it a whole week at school!!! Normal time. Normal drop off and pick up. But. Not without pain. Not without discomfort. Not without worry, mostly on my part. Even a message to his oncologist. But. It’s Friday and he’s at school!!! Today was a special dress day and in Adler Assemble fashion, he’s in his favorite colors red and blue and a Slinky Dog Dash t-shirt since it was summer vacation destination dress!! He said last night over dinner “I’m so so happy to be there it’s what everything we did was for and I’m there, it’s so great!!!” All said with the hugest smile on his face!!!! Happy Friday!! 🅰️⚓🌈💙

by | Sep 3, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP
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