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It. Was. So. Hot yesterday. Real feel 104. And it sure was. We found a couple spots to appreciate the AC and fans. Along with the heat and some other worries we almost took Adler to first aide but he didn’t want to make a fuss. Meds and a banana and lots more water and Power Aid….he kept going. We stayed hydrated, got cooling towels and Adler got yet another Disney cooling fan but man it was rather miserable at times. We kept reminding ourselves that at least we were miserable at Disney but damn that heat. Not to mention the walking for Adler isn’t easy. He’s doing it. He’s taking lots of breaks but it’s still uncomfortable for him. He had some other issues too that we worked through but they always leave him and me emotionally drained. But all in all we had a great day!! And we got to see Norma who we now officially call Aunt Norma!!!!

by | Aug 8, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

2 days ago, Adler walked into Magic Kingdom. He hasn’t done that since he was 6 on his Make A Wish!!! And even then after a few hours we got him a wheelchair. Not this time. Not to say he didn’t have pain because he did. He got very nauseous at dinner too. And some natural worries and fears were discussed while dodging the rain as we walked to Space Mountain, one of his favorite rides. Aaron’s taken pictures of us walking in every time even if I’m pushing him!! Even one time Adler got out of the wheelchair just to walk in and then got back in. The tradition continues!!! Walking!!!!

by | Aug 8, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP
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