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10 more days of weaning…..then…..out of it for good. He took his first shower without it on today. He said it felt so good. We head to Chicago this afternoon for appointments tomorrow morning. We have a lot to talk about as the concern is heavy, for all of us, especially Adler. Trying to find the balance has NEVER been easy on this journey and sometimes the advocating has to get a lil loud. I am hopeful they will listen and have some ideas tomorrow. Again, we’re not new to this so I know the drill. I wish we didn’t know because with that knowledge of the past and worry of the future comes fear. Too much. Too often. But hey the sun’s out and it should be a decent drive to the city!
from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP
10 more days of weaning…..then…..out of it for good. He took his first shower without it on today. He said it felt so good. We head to Chicago this afternoon for appointments tomorrow morning. We have a lot to talk about as the concern is heavy, for all of us, especially Adler. Trying to find the balance has NEVER been easy on this journey and sometimes the advocating has to get a lil loud. I am hopeful they will listen and have some ideas tomorrow. Again, we’re not new to this so I know the drill. I wish we didn’t know because with that knowledge of the past and worry of the future comes fear. Too much. Too often. But hey the sun’s out and it should be a decent drive to the city!
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5 hours without the brace today!!!!! He takes it off and puts it back on all by himself now. He says it’s liberating!! We head to Chicago tomorrow for his appointments on Wednesday morning. Oncology check up, labs and med pick up!! MRI is next month. #adlerbear #cancerkid #warrior #badass #cancerlife #justkeepgoing
from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP
5 hours without the brace today!!!!! He takes it off and puts it back on all by himself now. He says it’s liberating!! We head to Chicago tomorrow for his appointments on Wednesday morning. Oncology check up, labs and med pick up!! MRI is next month. #adlerbear #cancerkid #warrior #badass #cancerlife #justkeepgoing
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A late night that turned into the next day as we were up untill nearly 2am. He was very hot, nauseous, headache, stomach pain and back pain and his legs hurt. This trend seems to happen about 2 hours after he takes his night time dose. So. I got the bowl just I’m case, rolled Happy Tummy oil on his chest, tummy wrists and had him take deep breaths of it. I applied pressure to the nausea point per our acupuncturist on his wrists too. Rolled the muscle oil made just for him (so was the happy tummy in it’s beginning) on his legs and massaged them for him. Then he used the deep tissue massager on his legs. I had the TV on so we found a movie to watch and talked about all kinds of stuff. I also ended up giving him Tylenol too. But. I will leave you with another thing that Adler said that will stick with me forever…… “I don’t care if I lose my limbs, like my arms didn’t work and my legs hurt and I couldn’t walk well, I just don’t want to lose my mind”. These are the things that he thinks about. These are the things we talk about. These are the things that come with cancer.
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