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He’s really tired today. Fridays are our early days as we see the doctor in the morning. She’s pleased with how he’s doing and the x-rays looked normal. There’s no specific answer to the increased buttock pain but she gave us a script for a new muscle relaxer. A special dinner tonight to celebrate halfway and because he deserves it. He deserves it all. He’s the strongest human I know and this proves it even more.

by | Jul 23, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

Today is 2 weeks down. 2 weeks to go. Everyday during the week we’re at the hospital for 3 hours. PT, OT and he sees a pain psychologist. Then he has PT at home exercises and OT at home exercises to do. And he does them. Also he’s mindful of screen time and we are damn close the suggested bed time which is huge considering all the late nights we are used to because of pain. We also get in some physical activity and leisure activity as suggested along with Breakfast, lunch and dinner times followed as closely as possible. They mapped out his daily schedule the first day and we thought it would be hard and yes it’s been an adjustment but we’re all looking at the end goal here and with his continued determination and commitment to this program he’s adjusted quite well I’d say!! Easy, no, it’s not easy. And this is absolutely NOT a vacation. The fun will come at the end. And well deserved by our amazing son. Now to answer the question, is the pain better? No. But he’s got 2 more weeks. And he’s getting stronger. His buttock pain has actually increased and we see the doc this morning as we do every Friday and we will discuss this increased pain and his x-rays that he had Wednesday. He’ll need to see an orthopedic doc when we get home as suggested and we will. It’s all part of this never ending journey. Bold As Love.

by | Jul 23, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

Yesterday was rough. His pain plagued him throughout the day, especially in the evening. But. He still did his homework exercises and we took a walk. This program is intense. He’s moving more than he has in a long time. He’s sore and tired but he’s still doing what he’s supposed to along with actually having the pain that brought us here. There is no magic wand to just erase his pain or his cancer. No pills to cure it. Yes he’s amazing and I admire him for his determination but this has also been yet another neon lit arrow pointing directly to Adler’s poor worn out body that while growing up, hurts him. Daily. We are doing our best to keep spirits up and giving him all the love, comfort and support he needs but damn this pain. Damn it all. He asked me years ago “why can’t I just have cancer? Why do I have to have pain too?” It’s a question I could never answer and I still wonder myself.

by | Jul 20, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP
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