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So. Yesterday in the waiting room at Lurie on the 18th floor, which is the cancer and blood disease floor, the floor we are always on, I was hit with a wave of full emotion. There was a little boy sitting behind us in his wheelchair with his father. Bald and thin from treatment he chatted with his father about what he was watching on his iPad. He looked about 5. It reminded me very much of Adler at that age as that was him. Then an older boy probably about 17 got up when the nurse called his name. Very tall and lean and also bald. His Mom following behind him with all their stuff. At that moment I realized that I was sitting in the middle of Adler’s past and future. I got teary, felt like I couldn’t breathe and immediately touched Adler and felt the present. We have been at this for 7 years. My God. He’s alive. Here. On this earth with me still. I am beyond grateful for that. But damn the quality has been hard. The fight to keep him here also, very hard. Seeing those boys was like a weight of truth being slammed into my heart. And I felt for the parents. And I felt for me. And for Adler. Our reality is just like theirs and theirs like ours. So. I felt all that today as I took down Christmas. I honored the feelings and let them happen and did my best to let them go. Although, those images of those boys are forever with me now as they are my son too. What we’ve been through and what we could go through. The cancer life. For them and for us. 💙🅰️⚓🌈

by | Jan 7, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP
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