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Another late night for us. His stomach hurt and he just needed to talk more until he felt better. So I laid with him and we talked. It’s what we do. You learn to sit with the pain. To be friends with it. I hated it and cursed it for so long. But something happened this year. Without planning it and without execution. But. He and I…..we got used to it. Am I still angry about things, yes. All the time but somehow, somewhere in all the mess and in the dark with tears and all, we became friends with the pain. It’s been a shit year. But so was 2019 and 2018 and a couple more before that. Like 2014…..pure hell on earth. So yes 2020 globally sucked. But we made it. He made it. Again. Through surgery, through Covid, through family tragedy, through therapy for his arms, through treatment, through 12 months of Chicago trips even when it wasn’t safe because we HAD to, and through pain….so much pain. But. We did it. And as always it’s been my honor to tack on another year with this kid!!!! Bold As Love!!! And as always Fuck Cancer!!!!! 🅰️🌈⚓💙

by | Dec 31, 2020 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

Upon saying goodnight, I patted his blanket covered foot after about an hour of him being up just after 3am with yucky stomach stuff and said something very similar to this. I can’t imagine anyone else handling everything Adler has and continues to go through better than he does. He just does it. Nearly vomiting and fainting and feeling so bad IN A NECK BRACE…..he didn’t complain a bit. Nor did I. We have a routine. We both do our thing and we get through it. It’s just common here. It doesn’t mean it doesn’t suck because it sure does. But he handles it so well. With such grace, courage, strength and perseverance. In pain. In discomfort. On treatment. Post op. Back and forth to Chicago. Living in between. That’s how we do it. But it’s him who is living with it. Truly. I may have my ailments and my own health issues mentally and physically, even some that have stemmed from this way of life but he, he is the hero. A warrior in all of this. I admire him for it. Everyday I do. What an honor to be his mother. And I take Absolutely none of it for granted. He is as we have always said and will continue to say Bold As Love.

by | Dec 27, 2020 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP
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