#AdlerSwag
Donate

I’ve never knows a child who was more excited about school than Adler!!!!! He was literally potty trained in 3 days to be able to go to preschool. That was the deal. And he did it. He was more excited to be dropped off and be there with “friends” and his teacher Mrs. Jodi Price Freshour than on Christmas!!!! But. In this picture his pain had already begun. And it would continue. It would become relentless and debilitating. Soon he wouldn’t go back after Christmas break and begin testing with answers that weren’t satisfactory. I would become manic with fear and worry trying to find him help while dealing with his pain. The pain the would lead to his cancer diagnosis and his almost deadly hydrocephalus. The pain that needed a fentynal patch and morphine to subside. That pain. The worst pain. Episodes of crying and vomiting and fainting from the pain. God. But. That pain is gone. It did return when he was in second grade but not at the magnitude as in the beginning. And then it changed. The pain changed. At the root of it all is cancer. The inoperable cancer that lives inside him. That is active and hurting him. That required surgeries and treatment. Terrifying and our only hope treatments. But. He is here today. Living with cancer and his pain is minimal. Still pain but it’s minimal. So this morning when I saw this picture I was hit with the memory of happiness and pain. How we live on a daily basis, with cancer in happiness and pain. But. We live. And we love. And we hope. And we are here. Thankful!!!!!! All day everyday!!!!!!!

by | Nov 26, 2020 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

From Nov. 9th and then tonight. During his brace change. It takes two of us. One to stabilize and one to remove and clean the area. Aaron holds and I remove and clean. I got a little triggered tonight as the back piece was covered in hair. Even a clump on his skin. I know it’s just from the surgery and them shaving the area and me not being able to actually wash that part of his hair but man does that bring back some shitty memories of chemo. This boy has been through so much. And us right along with him. But he never complains much and he just goes with it. Because what choice does he have? Those are his words too. So yeah I’m gonna be cheesy here and say this Thanksgiving I’m definitely thankful for him. And for the courage and strength that he possesses. Such valor and I am honored to be his mother and his witness to his life. Bold As Love and yeah still FUCK CANCER!!

by | Nov 24, 2020 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

Dr. Alden is amazing first of all. Second, this kid is doing great. Post op appointment went very well. He’s very pleased with how it looks. We will be back in 8 weeks to see him again and discuss his weening out of the collar. We will be back for Adlers MRI the first week of December and then discuss his going back on treatment at that time with his oncologist. But. Today. Today was all good!!! Ohhhh. And…..Adler hasn’t needed anything for pain in a week!!! A WEEK!!!!! That hasn’t happened since he was probably 2 years old!!! Good. We need and are appreciating the good!!!!! Bold As Love. Always. 🅰️🌈⚓💙

by | Nov 18, 2020 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

Dr. Alden is amazing first of all. Second, this kid is doing great. Post op appointment went very well. He’s very pleased with how it looks. We will be back in 8 weeks to see him again and discuss his weening out of the collar. We will be back for Adlers MRI the first week of December and then discuss his going back on treatment at that time with his oncologist. But. Today. Today was all good!!! Ohhhh. And…..Adler hasn’t needed anything for pain in a week!!! A WEEK!!!!! That hasn’t happened since he was probably 2 years old!!! Good. We need and are appreciating the good!!!!! Bold As Love. Always. 🅰️🌈⚓💙

by | Nov 18, 2020 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP
X