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We got home from school, he had his snack and then did his exercises. His homework was already done or that would have been in there too. Unfortunately he did have quite a bit of pain later in the evening and he needed meds and we did stay up just a tad later so he could be more comfortable to go to sleep. But. It was a great first day of school. I hope today is just as good!!!!

by | Aug 19, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

To choose just one emotion isn’t possible. He was so excited that he didn’t sleep well and he was pacing at 7:08am dressed and ready to go. Adler has not started school at the normal time at the beginning of the year since second grade. Nor has he been able to attend all day in a very long time!!! YEARS!!!! I could go into an explanation of why that is but I don’t want to. I know why. You know why. But today, today was about accomplishment. He’s accomplished SO much and over came SO much in the past couple of years that today was an overwhelming sence of something I can’t quite place. So many emotions……. Joy for sure. Pure childhood joy. One that’s been vacant from our lives for years. He’s had bits of it. Tastes of it. But today was ALL of it. School. His happy place. Since he was 3 it’s been his love. And cancer and pain took that from him. And through his perseverance and our last ditch effort, the hale Mary that was Nemours Children’s Hospital, he made it to school today. Because there were and are no other options for his pain. That was it. And it worked. It worked. So. I walked away from him in that hallway with 100 emotions welling up inside and turned to see this and smiled under my mask and took a couple more pictures to capture the moment. The moment that Adler started 6th grade. Alive and “well” he’s there with his friends and teachers at HIS school. The past clashed with the present and the future looms. I had to pull over and cry my eyes and heart out. I called Aaron to tell him all about it. Man have we been through it. And we are still in it. Living with cancer is NOT easy but yet here we are celebrating this victory. Swimming in the joy that is Adler going to school normally for the first time in YEARS!!!!! My emotions will settle and the lost routine will come back and we’ll find all the old and new together. Nonstop thankfulness is where I am twisted with so much more that I can’t quite pick it up yet but right now, today, he’s at school!!!!!!

by | Aug 18, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

Today we met with Adler’s 6th grade teacher. He got his locker and he dropped all his stuff off. He was so excited!! Wednesday is the day!!!! Normal time. All day. He’s ready!!!!!! This will be his year!!!! He’s worked so hard for this. And he will continue to do so as to keep the momentum going!!! Trinity is and has been so amazing and he can’t wait to be back there!!! 💙💙💙💙💙

by | Aug 16, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP
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