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And this is one of the many reasons we LOVE Trinity Lutheran Church & School. Mr. Larry Brummet brought over ALL this stuff today and prayed over Adler before we head out this weekend. He had asked me what kind of candy and snacks he likes and the class hooked him up!!!!! Wow. Thank you so much!!!! Since the beginning they have been there for continued love and support. For 7 years they have been in our corner. When his pain began in preschool to his diagnosis and missing Pre-K. To treatment and half days in kindergarten with Mrs. Becky Peters Veen. To the one “good” year with Mrs. Jodee Price and into second grade when the pain returned in Mrs. Kristen Hoffman McGirr ‘s class. And trying to get to school for time with his class in third grade with Mrs. Teresa Blystone but spending more time on Google Classroom because of pain. Then the biopsy and loss of his arms and the shut down in 4th grade along with treatment again with Mrs. Metta Bailey Heublein. Which brings us to the here and now. And the rest of the teachers and staff!!!! Thank you!!!! The dream class that’s been with Adler since the beginning and is still with him now showing love before his surgery!!! Bold As Love all together!!!!! 💙💙💙💙💙 And also credit to all the loving families who have stuck with us and sent the gifts!!!!!! We love you all!!!!!

by | Oct 22, 2020 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

In a week, we will be in the hospital for Adlers surgery. Again. We will comfort him while the get him ready. Put the IV in and we will all be scared. Especially Adler. We will wait in the waiting room filled with worry, fear and hope. Again. Not much room in my thoughts for anything other than those waiting room feels. His next MRI form, I can add another surgery to the surgeries line. They don’t give you much room. I’ll have the write smaller. Because it’s not over after this. His treatment will continue for another year. More MRIs and appointments and necessary check ups and side effects will continue. This is just another goddamn part of it. Is it necessary, yes, his spinal cord is being compressed by the bones in his neck. So yes, it’s another “have to”. Adlers short life has been full of have to’s that he didn’t want to do. Not many want to’s on our list. We hope it gives him relief from the pain. The pain he’s in daily and nightly. The pain I sit next to him while he’s in and try to aide him as best as I can. It’s yet another life saving surgery for him. Thankful for it but hate the reason. Cancer is at the root of all of this and as positive as I try to remain and as hopeful as I truly am, man it pisses me off. A lot. And in so many ways. They say courage is like a muscle and it strengthens with use. Well. We ought to be fucking Superman by now. So. In a week we will walk in to the storm again. I’m not sure we’ve ever actually left it.

by | Oct 22, 2020 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP
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