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He had pain last night. He needed meds and the heating pad last night. He’s been doing his exercises and we’re getting ready for school this week!! He’s so excited!!! We had some fun with family last night too! See. It’s not gone. He’s not “cured” of his chronic pain. He’s just not letting it rule his life. The program gave him knowledge and strength. Both necessary in his fight. His specific fight. His fight against cancer and living with chronic pain because of cancer. His MRI is August 24th. Results on the 25th. Just when we will be settling into life again we’ll be heading to Chicago. September is coming up which is Childhood Cancer Awareness Month. This will be one 8th year knowing about that. I didn’t know before but I sure do now.

by | Aug 15, 2021 | Updates From the Road

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And. That’s a wrap. We are on the road now. 20 visits to Nemours Children’s Hospital. He finished the program and we did a lil Disney trip. 30+ days in Florida. We’ll be home tomorrow. Life goes on. It stopped for the time down here to focus on Adler and his pain. It was hard. Very hard. But necessary and a successful venture. His pain is better, not gone but better. We’ll be back in 6 months for a check up. Now to get this boy back to school!!!!!!!

by | Aug 10, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

In 2017 we came to Disney on what we called “Our Wish”. We brought Adler for his 8th birthday. What a better way to turn 8 when he wasn’t expected to see 5!!! So. We came back to The Boardwalk this time to honor how far he has come in this cancer journey and because we really like it here. Way different times currently but celebrating life is what’s necessary. His life and the beauty of it. Keeping him here has been hard. Debilitating pain that has been eased some since the program and internal ways of living worked on as well. It is one day at a time and today is an Epcot day but all of them are appreciated more than I can describe with my words or my tears or my laughter. Thankful for this morning for sure as I recreated these pictures!!!

by | Aug 8, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

It. Was. So. Hot yesterday. Real feel 104. And it sure was. We found a couple spots to appreciate the AC and fans. Along with the heat and some other worries we almost took Adler to first aide but he didn’t want to make a fuss. Meds and a banana and lots more water and Power Aid….he kept going. We stayed hydrated, got cooling towels and Adler got yet another Disney cooling fan but man it was rather miserable at times. We kept reminding ourselves that at least we were miserable at Disney but damn that heat. Not to mention the walking for Adler isn’t easy. He’s doing it. He’s taking lots of breaks but it’s still uncomfortable for him. He had some other issues too that we worked through but they always leave him and me emotionally drained. But all in all we had a great day!! And we got to see Norma who we now officially call Aunt Norma!!!!

by | Aug 8, 2021 | Updates From the Road

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