In a week, we will be in the hospital for Adlers surgery. Again. We will comfort him while the get him ready. Put the IV in and we will all be scared. Especially Adler. We will wait in the waiting room filled with worry, fear and hope. Again. Not much room in my thoughts for anything other than those waiting room feels. His next MRI form, I can add another surgery to the surgeries line. They don’t give you much room. I’ll have the write smaller. Because it’s not over after this. His treatment will continue for another year. More MRIs and appointments and necessary check ups and side effects will continue. This is just another goddamn part of it. Is it necessary, yes, his spinal cord is being compressed by the bones in his neck. So yes, it’s another “have to”. Adlers short life has been full of have to’s that he didn’t want to do. Not many want to’s on our list. We hope it gives him relief from the pain. The pain he’s in daily and nightly. The pain I sit next to him while he’s in and try to aide him as best as I can. It’s yet another life saving surgery for him. Thankful for it but hate the reason. Cancer is at the root of all of this and as positive as I try to remain and as hopeful as I truly am, man it pisses me off. A lot. And in so many ways. They say courage is like a muscle and it strengthens with use. Well. We ought to be fucking Superman by now. So. In a week we will walk in to the storm again. I’m not sure we’ve ever actually left it.

from Life with our little Super Hero Adler Bear https://ift.tt/31tn68D

Adler