His legs hurt most of the day. He said “They hurt pretty bad too…..but like I don’t even know what that means anymore…..” I looked back at him in the car and he had his head down and then looked up at me in the mirror and did a great fake smile. Rheumatology is supposed to reach out to me from Lurie Children’s Hospital to set up an appointment. I checked on that today. There may be something more to his testing positive for the ankylosing spondylitis gene. It all fits perfectly when we looked it up and discussed it with his local doc and his oncologist. Pain sucks no matter the where or the how. It just sucks.

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

Adler